Sickle Cell Interprofessional Health Sciences Library

Sickle Cell Interprofessional Health Sciences Library Sickle cell anemia is an inherited blood borne disease affecting some 100,000 individuals in the us, and nearly 8 million worldwide. persons of sub saharan african descent appear to manifest the disease to the greatest extent, with those of indian, hispanic, or middle eastern backgrounds also highly affected. The strategic plan and blueprint for sickle cell disease (scd) action identifies the strategic vision, strategies, and action steps for improving health care and health outcomes for individuals living with scd. the fundamental vision of the framework is to advance and extend healthy, productive lives for individuals living with scd and to advance understanding of sickle cell trait (sct).

Ppt Sickle Cell Disease New Approaches And Guidelines Powerpoint Presentation Id 9224062 Individuals living with sickle cell disease (scd) and sickle cell trait (sct) often experience racism, stigma, and implicit bias within and outside the health care system. scd specific community based organizations (cbos) have been and continue to be important in mitigating these experiences and therefore have a critical role in any strategic initiative to improve care and services for this. The present study examines telehealth in the pacific sickle cell regional collaborative (pscrc ), a geographically vast region funded by the health resources and services administration (hrsa) to increase access to quality care for individuals with scd. the pscrc is one of hrsa's five sickle cell disease treatment demonstration programs (scdtdp. High quality care for individuals living with sickle cell disease (scd) should be evidence based and accompanied by clear, measurable metrics that assess quality and improve performance. care should be delivered by a well trained workforce that is willing and able to provide the necessary services. chapter 4 discussed the myriad acute and chronic complications that individuals living with scd. Abstract. sickle cell disease (scd) is a monogenetic disorder due to a single base pair point mutation in the β globin gene resulting in the substitution of the amino acid valine for glutamic acid in the β globin chain. phenotypic variation in the clinical presentation and disease outcome is a characteristic feature of the disorder.